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Complaints: 1. It took for-freaking-ever to get latest DS 4 and the starter content downloaded, thanks to our slow DSL. I don't want to think about how long it'll take to download the content I want to start playing with. Maybe it's past time we discuss getting fiber optic again?
Non-complaint: The library is hiring me part time for the summer!
Awesome! And to me it does seem like a lot! In 12 years he will be 20. That is 144 months away. His rate of improvement currently is .67 per month and possible higher. If it stays the same and does not increase, .67 x 144 months would be 96.48 by 20. but I suspect he will increase above .67 per month and 100 % could be achieved before 20 unless something prohibits growth but based on the results growth seems inevitable. Congrats both of you are doing lots right!
Edit: Experts told me my kid would never be capable of printing within 3 inch lines (he was 7 or so). Based on their professional assessments, I expected my son to be dependent on and living with me for his entire adult life. They were wrong. He, a former geek squad for best buy and a former manager for staples, now works as IT for a hospital, owns a house, is married to a nurse, and together they have one child and 7 step-children from each of their former marriages. I won't lie . . . it was a tough, really tough road. Had to give him and also at times, myself, timeouts. The love and sense of responsibility carries one past the times we want too pull every hair from our heads, dig a deep dark hole and crawl in it . . . but unconditional love and a never quit spirit can survive anything and certainly those dark hole moments. Nobody achieved anything worthy without falling, getting back up, falling and getting back up over and over again. That's how the big wins come. This is a giant gain for you both!
Thanks to both of you, and others not quoted here as well.
I'm not sure what the future brings. I certainly hope his looks closer to your son, @ArtAngel , but I have a couple dear friends with level 3 kiddos who are now entering early adulthood, and while they've made great strides, they're nowhere close to independence (and might not ever be). So we take it one day at a time and do our best, and what comes is what we're meant to learn from in this life. The regressions are the hardest part (well, aside from the heartbreak of watching him struggle so much in the first place, and also the constant stress of keeping him safe when he has no respect for physics). In general he's doing a lot better since I graduated and his routine isn't in constant flux. He has more control over his days, what goes into them, and at what pace, and that seems to be the biggest thing for his ability to put his processing power towards gaining new skills.
I do know there's stuff in there that's not making it out where I can see it, just based on what he unexpectedly pops out with. On one of our walks last fall he'd started out facing one direction, but decided he wanted to be in the other end of the wagon. The snack tray's in the middle, so he has to go under it, which involved a lot of wiggling and maneuvering. (I was like, "Oh, so that was what you looked like when you were trying to change positions before you were born.") I laughingly asked him what he was doing. He grunted, not looking up, and declared, "Rotating."
Accurate, but I hadn't expected an answer at all, so that one just about dropped me.
He hadn't said the word before, and he hasn't said it again since.
To the other point... thankfully the buearocratic nonsense seems to be evening out some. The Lazy Lady was still being awful, but I made an end run around her, and also got in touch with someone else I've worked with previously and asked for Lazy Lady's supervisor's contact info. So I'll be writing an email as soon as I have the spoons to do it. Her behavior is horrid enough just in general, but considering she's servicing vulnerable populations who don't all have the capacity or ability to advocate for themselves as thoroughly as I had to, it's honestly terrifying the damage she could do to their lives.
The developmental disability waiver program I'm onboarding with is up to the "write the service plan" part, and I gave in and contacted one of the plan writing agencies off the list that had a description I vibed. It's been incredible. She's fantastic, her work is amazing, and when the county worker asked why it was, exactly, I was wanting to switch plans (EVERYONE TOLD ME TO THAT'S WHY!!!) she wrote me an email to send back and it solved everything. It's like having a personal trail guide, and I don't even know how to describe the relief. And I'll be permanently working with her going forward, through renewals and revisions and whatnot, so there's no bracing for impact when her part is done and I'm back on my own.
Yay for things getting easier! (Or working on getting easier, anyway!)
Non-complaint: Nice warm day, but heavy rain will come late this afternoon. I walked to my local town grocery for essentials (salad greens, fresh fruit, eggs, ...) and noticed on the way that the lawns in the neighborhood are lush & green, although a little long, needing their first spring haircut. A I've decided that Spring has officially arrived because last week I saw the neighbor's daffodils in bloom and today, the lush green lawns have a significant case of yellow measles with all the dandelions in their first full blooming. I made it to the grocery, and back, a total of 4 blocks so I was tuckered out when I got back and plopped into my recliner. Ahhhh!
Complaint: Promptly after plopping into my recliner I sprung a nose leak, breaking my recent record 7-day leak-free period by only one day.
But, I've noticed that my nose leaks are becomming shorter and milder, and quickly stopped (8 minutes instead of 20 minutes). And I no longer slough off a noticeable scab from the nasal ulcer. Back when this whole nosebleed thing started 15 months ago after my heart attack, my nose leaks would take an hour or more to quelch. So, there has been progress, be it ever so frustratingly slow.
I've noticed since having a minor stroke two years ago, nose leaks are more common. I'm taking Clopidogrel, an anti-coagulant. The leaks last a while longer but it's not too bad, just bloody inconvenient (pun intended).
I too had professionals on board. The one mistake I made was giving in and allowing more BRILLIANT people than me (experts) to convince me to enter him into a 6 month treatment program where he resided in a treatment center. Initially I said no. They said I suggest you hide all knives. He was a frustrated child but in my mind not violent. After he ran out in traffic at age 7 during a school event they retried to sell me on an institution. I slept with him as he rocked liked a maniac. I cried the entire night knowing the treatment residency was inevidable. 6 mos turned into 12. 12 into 18. Finally seeing how thin and frail he was, I yanked him out despite dire warnings and threats. Looking back it was one of the worse things I agreed with. wIsh HE HAD NEVER BEEN PART OF THE PROGRAM. Do not bow down to pressure. Do what YOUR GUT TELLS YOU.
Ooooo, you're lucky - I'm only 72, but there's no way I could have been able to mentally juggle that many concepts in my brain at once.
Respect, LG. Respect.
(Really though, Dude, sorry about the nosebleeds, that massively sucks. Good thoughts for better days, mate.
)
I have green eyes...but they're not mine.
Just kidding. Not about my eyes being green, though, they are. I didn't know that was so rare...cool.
My visiting here has been rare, too. Going through some personal stuff, so my online presence has been curtailed a bit. Not to worry, just Natural Processes doing their thing. I lost about 30+ lbs...and so did my older brother. Both of us began feeling a loss of appetite in the mornings. And the weight began to fall off. We each seem to have reached a stable weight now. We've had the doctor check us out we seem to be fine.
It WAS a mystery, until I realized that we stopped going to restaurants and fast food.
Oh, I almost forgot to give my condolences to Charlie Judge on the loss of his Katie.
My laptop is having WiFi issues. And it is not letting me use my Roku stick as a second monitor.
Bench testing a refurbished RTX3080Ti I bought recently before it goes into my rendering PC.
COMPLAINT: The RTX4060 normally in this rig is crap for rendering
NON_COMPLAINT: The RTX3080Ti is an awesome bit of kit and I'm going to get a second one to replace the RTX 4070 Super.
SECOND COMPLAINT: I need a new case to fit 2 GPUs as the PSU bulkhead is in the way.
Xyetxt is a named based on jetzt. I thought Xjetzt was not the right choice. She is green. Her parents are nymphs. Her aunt is a dryad. But she is a mix?
Yeah, I've got a 12GB RTX 3080 (not Ti) on my render machine (10th gen Intel i7-10700, 64G 3200 DDR4) and it has been wonderful for my needs. The system is at least four years old now but I haven't been enthused about stepping up to the newer series. It's a bad time to be trying to afford newer machines.
I'll be happy if this machine lasts another 6 years. I don't understand the industry's big push to obsurdly fast machines. Seems like an engineered money grab to me. Yeah, there are some professionals who actually use the speed, but for normal nerds, things have been fast enough for 10 years. Just my opinion.
Regarding the comment: "I need a new case to fit 2 GPUs as the PSU bulkhead is in the way." Have you thought of using a saw or a big hammer?
I'm tempted to put the PC back into one of my open frame test cages and build my own case around it. I have enough spare parts to build another gaming rig into the Nzxt H7 Flow it's currently in.
I feel like doing Doctor Matr Smith fan art when I have have the assets for this. I got a blue police box but it is just a boring box on the inside.
Also who was the celebrity that DAZ sold photos of her on a DVD, which I lost
complaint/non-complaint: Well, spent way too long on that email, but it's done. I sent the lazy lady's supervisor a detailed timeline of our interactions, plus a few paragraphs outlining the real world harm she has caused me and could cause others, especially those less capable of advocating for themselves (considering everyone on this program is part of a vulnerable population, I'd say that's likely a decent chunk). I don't know if anything will come of it, but I have to think that if there was no worry about consequences, the rep wouldn't have been so dedicated to withholding the info.
I hope my speaking up makes things easier for someone else who comes after me, but regardless, I've done all I can. I can close that chapter with a clear conscience.
There's definitely something to be said for that clear conscience part.
...and I get a response from the supervisor, basically saying she doesn't see what the problem is.
Even though I outlined in VERY CLEAR DETAIL what the problem was.
Ladies and gentlemen, my tax dollars in action.
Sigh.
I tried. When future people on this program run face-first into her nonsense, it's not because I failed to speak up.
Call up the local office for your state representative &/or senator. Those office staffers are scary-effective. Once I had issues with unemployment for weeks. I called the senator's office, and had an unemployment agency supervisor call me on a SATURDAY babbling apologies while cutting my check for back payments.
Non-complaint: I just got hired at the local library!!
YAY!!!!! Celebrating with you!!!
I'll keep it in mind. Definitely don't have the spoons for it today, but maybe another day.
Glad you got good service, though. A Saturday! That's impressive! I don't know what that staffer said, but they need to bottle it!
...you still did what you could to help others out in the future. That is what counts.
It is sad that integrity frequently takes a back seat. but we cannot let that defeat us.
...excellent. Congratulations
Congratulatiuons, but don't wander too far into L-space
You are so lucky! I volunteered at the base library and found not only the employees wonderful, but the repeat visitors (toddlers to grandparents and students of all ages) just wonderful to help and interact with.
You have a record of documentation at their office and in your records for the future. When you are ready, you may choose to elevate it or not. What surprises me is her response though. I am proud of you. It takes guts to document this type of issue.
Thanks.
I guess I'm not surprised at her response... not entirely, anyway. I've worked places where the management was just as bad -- if not worse -- than the employees. Disappointed, but I think I've lost too much faith in humanity to be surprised.
In the meantime, I have to pivot to dealing with medical assistance again, because today I got a scolding letter in the mail saying I had received a mailing previously and not picked a health plan to go with the disabiity MA for Little Dude, and I needed to return the form that was sent.
1. Kinda hard because NO I DID NOT RECEIVE A MAILING
and
2. I spent literally four hours on the phone through four different departments, just to get to the one that could enroll me in a plan, because no one had said anything about a plan, and I was pretty sure that I needed one. And she told me I did not need one, so no, she wouldn't be enrolling me.
SO WHICH IS IT???
And for the love of mercy, could these nitwits just TRAIN THEIR PEOPLE???? And maybe, I dunno, stop yelling at us poor schmucks being dragged through the system for not knowing when we're being fed a line of bologna?
So guess what I'll be doing tomorrow....
What's behind door #1? It's a whole lot of #2!!
non-complaint: After only half an hour on hold (spoiler alert: the music has not gotten better) I talked to someone who could help me on the first try. Turns out the letter was sent in error and I can disregard it.
Now, granted, that's half an hour of listening to sanity-destroying hold music that I never should have had to endure, but I was prepared for another full-day ordeal like last time, so I'll take the win. And it means I don't have to pick a health plan, which makes me even happier.
Non-complaint: Wheee..., tomorrow is a urology checkup appointment.
Which means I get to have a restaurant meal, be it breakfast or brunch.
And I'm close enough to the hospital I can toddle (slowly) two blocks up the hill to the hospital where I will park myself in the finance office until I resolve their problem of not knowing which insurance company I'm now using and they promise to resubmit the bills for which am unwilling be the fall guy. Having done this previously (5 years ago), it seems that showing up in person, seems to have magical results.
Complaint: It's still four weeks before I get paid again (SS deposit), and I'm already bottoming out on my budget this month.
Sigh, dipping into the savings again. Grrr..., darn insurance deductables on doctor appointments and medical tests are eating me alive, but the silver lining to the cloud is that at this rate, somtime before Halloween, all the deductables will have been been paid and MediGap will then (supposedly) take care of everything else for the year(yay!). So, I'll arrange with the Great Spirit to have all my major medical breakdowns after that.
delurking.. life has been really intrusive the last 8 months.. I can surely sympathize with your medical woes.
for what its worth, in September was admitte to hospital with svere life threatening anemia.. spent a week in there, with 3 blood transfusions, 3 iron infusions, a CT scan, a colonoscopy, an endoscopy., 2 specialized ultrasoundsfollowed by some esophageal banding on varisces. Then over to a specialist, new meds, and follow up endoscopies every two months,plus an echocardioram. and anotehr specilazed cancer screening via ultrasound, and 4 goes of monthly iron infusions . - will never see a bill for all that.
Diagnosis was finally conforned as end stage metabolic liver disease as a complication and consequence of long term Type 1 diabetes.. Off to the hospital again for another set of follow up tests and another iron infusion.... I;m not curable, but am stable, and I'll settle for stable..
I'm so sorry. Wishing you comfort and continued stable status.